How We Handle Data Requests and Deletion

Audience: all

Your personal health data is important and protected. This guide explains how you can request access to your health information and ask for it to be deleted when needed. We describe the typical steps involved in making data requests and what to expect during the process. Understanding your rights helps you stay informed and in control of your health information. Telemedicine services often collect and store data securely, but you have options to manage your data. This guide also highlights when telemedicine can assist with data requests and when you may need to contact other organizations or providers. Protecting your privacy is a shared responsibility, and knowing how data is handled helps you make safe choices about your care.

Red flags — go in person / ER

• If you receive unexpected requests for your personal health data, do not share information and report it to your telemedicine provider immediately.
• If you notice incorrect or suspicious information in your health records, contact your provider promptly to correct it.
• If your data deletion request is denied without clear explanation, seek advice from a trusted health advocate or data protection authority.

What telemedicine can do

• Providing access to your telemedicine consultation records and related health data.
• Answering questions about how your data is stored and used within the telemedicine platform.
• Processing requests for corrections or updates to your health information stored by the telemedicine service.

What telemedicine cannot do

• Deleting data that must be retained by law or for ongoing medical care.
• Accessing health records held by other healthcare providers or institutions outside the telemedicine service.
• Resolving legal disputes related to data privacy or breaches, which require specialized authorities.

Understanding Your Health Data Rights

Everyone has the right to know what personal health data is collected about them. This includes medical records, test results, and communication with healthcare providers. You can usually request a copy of your data to review or share with other providers. You also have the right to ask for corrections if information is wrong or incomplete.

How to Request Your Data

To request your health data, contact the telemedicine service or healthcare provider directly. They may have a specific form or online portal for data requests. When making a request, provide clear details about the information you want and your identity to protect privacy. Typically, you will receive the data within a set time frame, often 30 days.

Requesting Data Deletion

You may ask for your personal data to be deleted or removed. However, some information may need to be kept for legal or medical reasons, such as records required for ongoing care or public health. The service will inform you about what can be deleted and what must be retained. Deletion requests are handled carefully to protect your rights and safety.

Protecting Your Privacy During Telemedicine

Telemedicine providers use secure systems to protect your data. Always use private devices and networks when accessing your health information. Be cautious about sharing sensitive data over unsecured channels. If you suspect a privacy breach, report it immediately to the service and relevant authorities.

When to Seek Help Beyond Telemedicine

Some data requests or issues may require contacting your local health authority, legal advisor, or data protection office. If you experience difficulty accessing or deleting your data, these organizations can provide additional support and guidance.

How to prepare for your tele-visit

• Have your identification ready to verify your identity.
• Know the specific data you want to access or delete.
• Check if the telemedicine service has a dedicated data request form or portal.
• Prepare any questions about how your data is used or protected.
• Note down dates or details relevant to your data request for clarity.

After your tele-visit

• Review the data provided carefully for accuracy and completeness.
• Follow up promptly if you find errors or missing information.
• Keep records of your data requests and any responses received.
• Securely store any copies of your health data you receive.
• Report any concerns about privacy or data security to the telemedicine provider.

FAQs

How long does it usually take to get my health data after a request?

Most telemedicine services aim to provide your data within 30 days of your request. This time frame may vary depending on the provider and local regulations.

Can I have all my health data deleted from the telemedicine service?

You can request deletion, but some data may need to be kept for legal, safety, or medical reasons. The provider will explain what can and cannot be deleted.

What should I do if I suspect my health data has been accessed without permission?

Report the issue immediately to your telemedicine provider and follow their guidance. You may also contact a data protection authority for further help.

Is it safe to share my health data through telemedicine platforms?

Reputable telemedicine services use secure systems to protect your data. Always use private devices and secure internet connections to reduce risks.

Who can I contact if my data request is denied?

If your request is denied without a clear reason, you may seek advice from a health advocate, legal advisor, or data protection agency in your area.

Sources

1. Health Information Privacy — MedlinePlus | U.S. National Library of Medicine / National Institutes of Health.
2. Protecting Personal Health Information in Telehealth — Centers for Disease Control and Prevention (CDC).
3. Patient Rights and Responsibilities — Mayo Clinic.
4. Your Health Records and Your Rights — National Library of Medicine.

This guide provides general information about handling data requests and deletion in telemedicine. It is not a substitute for professional medical advice or legal counsel. If you have specific concerns about your health data or privacy, please consult your healthcare provider or a qualified expert.