How to prepare for a video visit about Interstitial Cystitis (Painful Bladder Syndrome)

Audience: pediatric

Interstitial Cystitis (IC), also called Painful Bladder Syndrome, is a condition that causes bladder pain and frequent urination. Preparing for a video visit with your healthcare provider can help make sure you get the best care possible. During the visit, your doctor will ask about your symptoms, how often you urinate, and any pain you feel. You may also discuss treatments and ways to manage symptoms at home. It’s important to have a quiet space with good internet connection and to have your questions ready. Remember, telemedicine visits are for education and guidance and cannot replace in-person exams when needed. If you notice severe pain, blood in urine, or fever, seek urgent medical care.

Red flags — go in person / ER

• Severe bladder or pelvic pain that worsens suddenly — seek urgent medical care.
• Blood in urine — contact healthcare provider immediately or go to emergency care.
• Fever with urinary symptoms — may indicate infection; seek prompt medical evaluation.

What telemedicine can do

• Discussing symptoms and medical history related to Interstitial Cystitis.
• Providing education about the condition and symptom management.
• Guiding on lifestyle changes and when to seek further care.
• Reviewing current medications and advising on general use.

What telemedicine cannot do

• Performing physical or pelvic examinations.
• Ordering or conducting urine tests or imaging during the visit.
• Diagnosing new or complex conditions without in-person evaluation.
• Managing emergencies or severe symptoms requiring immediate care.

What is Interstitial Cystitis (Painful Bladder Syndrome)?

Interstitial Cystitis (IC) is a long-term condition that causes bladder pain and a frequent need to urinate. It can affect children and teens, causing discomfort during daily activities. The exact cause is not fully known, but it is often linked to irritation or inflammation of the bladder wall.

What to Expect During Your Video Visit

Your healthcare provider will ask about your symptoms, including how often you need to urinate and the type of pain you feel. They may ask about your medical history and any treatments you have tried. The provider cannot perform a physical exam during the video visit but can guide you on next steps or tests that might be needed.

How to Prepare for Your Video Visit

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Managing Symptoms at Home

Your provider may suggest ways to reduce bladder irritation, such as avoiding certain foods or drinks, practicing good bathroom habits, and using heat packs for pain. They might also discuss medications or therapies to help manage symptoms. Always follow your provider’s advice and report any changes.

When to Seek In-Person Care

If you experience severe bladder pain, blood in your urine, fever, or difficulty urinating, you should seek medical care in person. These signs may indicate a more serious problem that needs urgent attention.

How to prepare for your tele-visit

• Choose a quiet, private space with good lighting for your video visit.
• Ensure your device is fully charged and connected to a stable internet connection.
• Prepare a list of symptoms, including frequency and type of pain.
• Write down any questions or concerns you want to discuss.
• Have a parent or guardian available to assist if needed.
• Keep a list of current medications and any treatments you have tried.

After your tele-visit

• Follow the treatment or management plan discussed during the visit.
• Monitor your symptoms and note any changes or new symptoms.
• Schedule follow-up appointments as recommended by your provider.
• Seek in-person care if you experience red flag symptoms.
• Maintain communication with your healthcare team for ongoing support.

FAQs

What causes Interstitial Cystitis in children?

The exact cause of Interstitial Cystitis is not fully understood. It may involve bladder lining irritation or inflammation. Sometimes, it is linked to other health conditions, but it varies from person to person.

Can Interstitial Cystitis be cured?

There is currently no cure for Interstitial Cystitis, but many children manage symptoms well with lifestyle changes, medications, and other treatments recommended by their healthcare provider.

Is a video visit enough to diagnose Interstitial Cystitis?

A video visit can help your provider understand your symptoms and guide you, but a full diagnosis often requires in-person exams and tests. Your provider will advise if you need to come in for further evaluation.

What should I do if my child’s symptoms get worse?

If your child has severe pain, blood in the urine, fever, or difficulty urinating, seek medical care promptly. These could be signs of a more serious condition.

How can I help my child prepare for a video visit?

Help your child find a quiet space, prepare their symptoms and questions, and be ready to assist with technology during the visit. Encouraging them to describe their pain and feelings clearly helps the provider understand their condition.

Sources

1. Interstitial Cystitis/Painful Bladder Syndrome — MedlinePlus, U.S. National Library of Medicine.
2. Interstitial Cystitis — Mayo Clinic.
3. Interstitial Cystitis/Painful Bladder Syndrome Fact Sheet — National Institute of Diabetes and Digestive and Kidney Diseases.
4. Interstitial Cystitis/Painful Bladder Syndrome in Children — American Academy of Pediatrics.

This telemedicine guidance is for educational purposes only and is not a substitute for in-person medical care. If you have urgent symptoms or concerns, please seek immediate medical attention.